Major issues page

So now we have a new government. 
There's also a new White Paper detailing with proposals for people with learning disabilities.
What follows is Mencap's manifesto - the issues are as real now as they were before the election

Community Services Money
Equal Rights Education
Day Services Employment
Health
Community Services

Funding shortages are leading to people in need being denied services. Service provision is a growing postcode lottery.

Key Facts

  • Most Social Services departments are restricting access to services by tightening the eligibility criteria.

  • People with a learning disability often have little choice in where they live or whom they live with.

  • 60% of people with a severe learning disability live with their parents.Image F small.jpg (71671 bytes)

  • 25,000 people do not have appropriate housing, and many have to live at home with elderly parents.

  • Over 100,000 people with severe learning disability and their carers can’t get short-term breaks.

Mencap wants

  • Increased funding and provision of learning services.

  • Better quality care and person-centred services.

  • An Extra 6,000 housing places per year to give over 25s the choice of leaving if they want to.

  • More housing options, with more supported living, as opposed to residential care.

  • A legal right to short-term breaks.

  • Abolition of charges for community care services such as day centres.

  • Better transport facilities, including the expansion of Taxicard and Dial-a-Ride.

"I’m worried sick about what will happen to Jeremy when I die."
Beatrice-Lyons, parent.

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Equal rights

People with a learning disability face prejudice and widespread discrimination. This violates their civil and human rights.

Key Facts

  • Nine out of ten people with a learning disability have experienced bullying and harassment in the last year.

  • Disabled people are four times more likely to suffer sexual abuse.

  • There is no legal framework for disabled adults who are unable to communicate their wishes.

  • Many people with a severe disability have had unnecessary medical treatment imposed on them, or have been denied the treatment they needed.

Mencap wants

  • Greater enforcement of people’s rights under the Disability Discrimination Act and the Human rights Act.

  • A change of public attitudes towards people with learning disability.

  • A strengthening of the law relating to sex offences.

  • A new "abuse of trust" law to outlaw sexual relationships between care staff and those they have are caring for.

  • Legislation to provide an effective framework for decision-making on behalf of adults who are able to communicate their wishes.

  • Doctors to be required to consult parents and cares before making life and death decisions affecting people with a sever disability.

"I get called stupid, teased all the time. People follow me every day and call me names, threaten to kill me in the street."
Sam Taylor.

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Money

People with a learning disability do not have enough money for a reasonable quality of life.

Key Facts

  • The benefits system fails to adequately support people who are unable to work.

  • Benefits are insufficient to cover the extra costs of disability.

  • People living in residential care homes have only £15 a week spending money.

  • The present system is difficult to understand and many fail to claim their entitlement.

  • The benefits system creates a barrier to work.

Mencap wants

  • A significant increase in benefits for people unable to work because for their disability.

  • A benefits system recognising that people in work needs a combination of wages and benefits.

  • Income support earnings disregard increased to at least £30 per week.

  • Extension of the Disabled Persons’ Tax Credit to people working less than 16 hours per week.

  • Increased Disability Living Allowance to meet additional coasts that people with learning disabilities incur.

  • Restoration of the Disability Living Allowance mobility component for people in NHS accommodation.

  • A government strategy to increase the take-up of disability benefits.

" Why do I only get paid £3 a day for that work? I can’t buy anything nice."
Jane Laing

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Day Services

Day services for people with a learning disability are limited. They need modernisation and expansion.

Key Facts

  • Most people wit a severe learning disability need daytime activities as few have a job.

  • More than 20,000 people do not have a day centre place.

  • Many people only get a service for part of the week.

  • Day centres are closing without adequate services to take their place.

  • Services for people with profound and multiple disabilities are shrinking.

Mencap wants

  • At least 20,000 more quality day service places.

  • Day services available five days a week from nine to five.

  • Extra funding to modernise day services and to support people with profound and multiple disabilities.

  • Local resource centres that offer a range of activities.

  • Day centres to remain open unless they are replaces with good quality alternatives.

  • Independent regulation and inspection of day services.

  • Appropriate training for all staff.

" I feel useless not having anything to do every day."
Sharon Perks

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Education

Parents of children with a learning disability are denied choice. Their children don’t get the support they need.

Key Facts

  • There are 1.5 million children with special needs, of whom nearly 250,000 have statements.

  • Statements specify extra support, but often result in children getting less classroom support than they need.

  • Teaching Assistants providing classroom support often have no training in education or special needs.

  • Children are often excluded from school because of their health needs.

  • The curriculum for young people and adults is often narrow and restrictive.

Mencap wants

  • Parents to have a real choice of a mainstream or special school for their child.

  • Good quality inclusive education in mainstream schools.

  • Appropriate training for Teaching Assistants, and their full involvement in lesson planning.

  • No child to be excluded from school because of a failure to meet their health needs.

  • A transition plan for every child as they move to adult services.

  • A right to lifelong learning for young people and adults that meet their needs.

"Since Ruth has been at our local school, it has been unable to provide her with enough support in the classroom"
June Tyley, parent

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Health

The NHS fails the health needs of people with a learning disability.
They are often excluded from basic health services.

Key Facts

  • People with a learning disability get inadequate primary health care.

  • They are often denied treatment for problems such as heart disease.

  • Adults have very limited access to speech and language therapy and physiotherapy.

  • Only 3% of women with a learning disability get cervical cancer screening, and only 17% of over 50s get breast screening.

  • No one takes responsibility for specialist learning disability services.

  • 3,000 people with a learning disability are still living in long-stay hospitals.

Mencap wants

  • Annual health checks and equal access to healthcare for every person with a learning disability.

  • Primary Care Groups and Trusts to take responsibility for the health of people with a learning disability.

  • Better learning disability training for NHS staff.

  • More speech and language therapists, physiotherapists and community learning disability teams, giving better community support.

  • Learning disability registers for children and adults so that services can be properly planned.

  • All long-stay hospitals to close, and people to be resettled in the community.

"The doctors told us we expect too much from our son’s life. His human rights have been violated by the medical profession."
Bill Tutty, parent

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Employment

People with a learning disability face discrimination when trying to get a job.

 Key FactsImage J small.jpg (64541 bytes)

  • Disabled people are twice as likely to be out of work.

  • Fewer than one in ten people with a severe learning disability are in work.

  • Over one million people with disabilities want to work.

  • There is a shortage of at least 40,000 supported employment places.

  • The benefits system is a barrier for many people wanting to work.

  • Most employers have no experience of employing people with a learning disability.

Mencap wants

  • Double the number of people with a severe learning disability in work

  • 40,000 more supported employment places.

  • Expansion and better promotion of the Assess to Work scheme, offering on-the-job support.

  • New rules for Disabled Persons’ Tax Credit, making work pay for part-time workers.

  • A Government strategy to promote employment of people with a learning disability.

"I want to work, but they won’t give me a chance."
John Lotts

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© Bromley Mencap 2001
Bromley Mencap is a registered charity - No. 800685

Page last revised 29 September 2001